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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

What Narcolepsy Meds Work For You?

What Narcolepsy Meds Work For You?

I've tried almost all of the narcolepsy meds and nothing worked. I'm on Adderall 20mg 3 times a day... which barely work all day, and I take Trazodone 150mg at night (which work great) to sleep.

posted June 4
A MyNarcolepsyTeam Member

Wakix has had the biggest impact on my narcolepsy! Modafinil, Adderall, and Ritalin have also been beneficial, but not nearly as much as Wakix.

posted July 8 (edited)
A MyNarcolepsyTeam Member

Have you tried Xyrem or Xywav? Or for daytime, Wakix? Wakix is the first non stimulant narcolepsy med on the market that works directly with your sleep/wake hormone, hypocretin. Changed my life!

posted June 10
A MyNarcolepsyTeam Member

The medicine that has worked best for me has been 10 mg of dextroamphetmine twice a day with an optional 3rd if needed. Extra 15 tablets per month. Insurance companies always deny because of the extra pills. Seen same doctor for 16 years. Have tried everything else out there except the newest meds. I just use GoodRx and pay out of pocket.

posted June 5
A MyNarcolepsyTeam Member

Sorry for my late response. I have tried Xyrem. The higher I went in doses made me sick to my stomach. I also stopped taking it because at the time my father was having heart issues. One night just after my 2nd dose of Xyrem I got a call, my dad was taken to the ER, his heart was in Afib. That was brutal staying awake and having to drive. My sleep doctor wants me to try Wakix. How does it make you feel?

posted July 4

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