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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyNarcolepsyTeam Member asked a question πŸ’­
Sioux Falls, SD

I recently had my doctor say there is nothing else they can do medically for my narcolepsy; so I need to make lifestyle changes. One is exercising and I always feel to worn out or tired to do that. Honestly, my energy is used up doing household chores or other daily tasks that need done. The other recommended life changes I already do or am working on. But this is the big one that I have been told over and over to do and I struggle. :(

October 17, 2022
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A MyNarcolepsyTeam Member

I play music and that gives me the little boost I need to get started. Plus I only do very short sessions, 10-20 minutes. At work, I do 10-20 squats when I use the restroom. (That adds up because I drink a ton of water so I'm frequenting the bathroom often!)
I hate exercising but I can't deny the positive effects. I allow myself to stop after 5 minutes if I still feel too tired once I get started. Getting started seems to be the biggest hurdle.

January 22, 2024
A MyNarcolepsyTeam Member

Thank you for the advice I am still trying to figure out how I can not use up all the energy with exercise and still get what I need done during the day.

November 29, 2022
A MyNarcolepsyTeam Member

@Wolfemom53, I understand what you're saying totally. My theory is and what I do is listen to music mostly....why because I'm already exhausted from work as a CNA you get plenty of exercise πŸ˜€.
I also use the table water fountains, the noise helps me relax,wind down from my day. My Meds are out of my system by 5:00 pm, I struggle because I'm sleepy now.
I hope you find something that will work for you.πŸ™πŸΎβ£οΈ

October 22, 2022
A MyNarcolepsyTeam Member

Hello ladies, my doctor still has me on medication but feels he has tried what he felt would work and I seem to not be getting very far with any of the medication.. Regarding lifestyle changes the one I believe everyone has heard is to exercise (Which is hard like I said), moving past that one he has recommended proper sleep hygiene (like having the room as dark as possible, possibly read a book a half hour before bed, set a regular wake-up and sleep time, etc..), I have seasonal affective disorder; so he recommends me using my light box in the morning and exercise in the morning, try to get my nap in; but only for 20to 30 minutes.. Stuff like that.
He tells me the most important thing is to try and get a regular night sleep and exercise.

October 20, 2022
A MyNarcolepsyTeam Member

@A MyNarcolepsyTeam Member same here!

October 19, 2022

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A MyNarcolepsyTeam Member asked a question πŸ’­
Pennsylvania Furnace, PA

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