We’re all different! I hated the way sunosi made me feel. I told my doctor that I had MMS and he got a puzzled look on his face so I explained ….. motor mouth syndrome! My mouth would not stop talking. I was as ADHD as any kid I taught in 40 1/2 years of teaching, and I had some doozies! I felt drugged all the time but kept going… from one thing to another, never completing anything. I’m now on XYWAV, taking a dose at bedtime and another 4 hours later. I usually get 5 - 6 hours of sleep a night, sometimes only 4, up to 7. However, whenever I sit down, I doze. To get things done, I stand or keep moving until I’ve accomplished whatever I needed to be done. Then I sit and doze.

@A MyNarcolepsyTeam Member you are 100% correct. The only meds that actually work for me is the Adderall X R
Modfaninil 200mg and Fluoxentine. My pulmonologist introduced me to xywav and xyrem but I had to many side effects, now I've just started the Adderall X R which is working for me.

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A MyNarco...

As I've learned with narcolepsy when we sleep we are not getting the required stages of restorative sleep and that is why I wake up and never feel refreshed. I feel like I've been up all night or had a late night with alcohol and feel hungover. Then fall back asleep multiple times struggling to stay awake. The only meds that have ever worked for me are Adderall, xyrem, sunosi, and now switching to xywav due to sodium and high blood pressure. It's still a struggle though as nothing seems to work 100%