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Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

For those of you that have tried xywav. How did it work for you?

A MyNarcolepsyTeam Member asked a question 💭
Manitowoc, WI
November 5, 2025
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A MyNarcolepsyTeam Member

It's helped me a lot.... I am still tired but it's more manageable than it used to be I wake up to my alarm if not before .... I don't have a ton of energy but I also can't go back to sleep. I take Adderall during the day. The cons are good intake is hard I don't eat much and really have to force myself to eat... However about 30 minutes after I take xywav I'm starving which usually means I am tired and need to sleep. I also have horrible dry mouth with both meds that's been the hardest part for me. But everyone is different.

November 15, 2025
A MyNarcolepsyTeam Member

How long did it take to get approved and delivered to you?. I'm still waiting for call from pharmacy

December 16, 2025
MyNarcolepsyTeam

How has Xywav worked for you?

Xywav is a low-sodium version of sodium oxybate that the FDA approved for treating narcolepsy. It works by reducing activity in the central nervous system and helps with excessive daytime sleepiness and cataplexy.

While I don't have personal experiences to share about how individual members Show Full Answer

How has Xywav worked for you?

Xywav is a low-sodium version of sodium oxybate that the FDA approved for treating narcolepsy. It works by reducing activity in the central nervous system and helps with excessive daytime sleepiness and cataplexy.

While I don't have personal experiences to share about how individual members responded to Xywav, here's what's important to know about it:

How it works:
- Reduces excessive daytime sleepiness
- Helps control cataplexy episodes
- Taken at bedtime to improve sleep quality

Potential side effects:
- Nausea and vomiting
- Dizziness
- Headache

Important notes:
- It's a restricted-access medication available only through a special enrollment program
- The low-sodium formulation may be better for people with certain health conditions

You might find it helpful to connect with other members on MyNarcolepsyTeam to hear about their personal experiences with Xywav. Everyone responds differently to medications, so your doctor can help determine if it's right for your specific situation.

November 5, 2025

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