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I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.
I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more
It was shown years after the h1n1 flu but 1st thought to develop narcolepsy from the vaccine in the UK that people who caught this flu did develop narcolepsy from the virus itself and there is a connection between it and having mononucleosis at some point.
I had been Dx before H1N1
Dr. had demanded that I had to get the flu shots or find a new Dr.
Don't fight it, go with the flow, and great tips above.
I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more
Since the hypothalamus gland is affected what type of symptoms have you experienced besides excessive sleepiness?
Not sure if all of my bizarre symptoms are directly related to narcolepsy but some might be.
The symptoms I am trying to figure out are :
Low grade fevers (10-15 per month)
Subclinical hypothyroidism with normal t3 &t4
Extreme chocolate milk craving (about 40oz a day)
No appetite, without weight loss , no thirst either
Very interested in others symptoms, sometimes patients can… read more
I used to get low appetite when I'm sleepy during the day and hunger attacks at night when I wake up. This in the long run led to undernourishment. Thankfully, my neurologists have prescibed a… read more
influenza, split (incl. purified surface antigen)
Anyone have info on the vaccine I received it 11/30/2010 I was given clinical trial vaccine with informed consent ten years letter I get diagnosed with narcolepsy with cataplexy. I figured it out and asked Kaiser why I was given clinical trials vaccine and not watched properly they then deleted it off saying I didn’t receive a vaccine. I have proof of it all but no one wants to help me get answers it’s pretty fucked up in my opinion. I was only… read more
Kaiser permanente deleted the records of the vaccine that was on my immunization records for 10 years I have proof for everything I say with clinical trials vaccine happening at that time and kaiser… read more
I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.
It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.
Is anyone out there taking Wakix? Has it helped you? My concern are side effects, etc. Let me know what you think of it. Thanks!😴
