Quick Links
About MyNarcolepsyTeam
Powered By
I was on prednisone for 3 months last year and it's the only time I've felt normal energy, but it stopped working and cannot be taken longterm so I was just curious if anyone has seen improvements while on prednisone for other conditions. It would make sense if narcolepsy is an autoimmune disease.
Sweats and hot body 24/7
I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.
It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.
Emmanuel Mignot wins Breakthrough Prize for discovering cause of narcolepsy
https://med.stanford.edu/news/all-news/2022/09/...
Yes BUT this is only true for type 1 narcolepsy. Scientists now believe that type 1 narcolepsy could be autoimmune in origin due to a gene found in 99% of NT1 patients. (for those interested, HLA… read more
I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.
I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more
I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more
Don't fight it, go with the flow, and great tips above.
