living with narcolepsy and narcolepsy | MyNarcolepsyTeam

Connect with others who understand.

sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Community guidelines Crisis Accessibility
Resources
Diagnosis & Information Managing Your Condition Treating Migraines All Resources
About MyNarcolepsyTeam
What is MyNarcolepsyTeam Terms of use Privacy policy
Powered By
Real members of MyNarcolepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "living with narcolepsy"

reset
Top 5 searches:
What Are Some Some Of The Best Coping Mechanisms/tips For Coping With Narcolepsy?
A MyNarcolepsyTeam Member asked a question đź’­
•
View reactions
A MyNarcolepsyTeam Member

Don't fight it, go with the flow, and great tips above.

What Is 'team Building' For? Do I Need To Do This?
A MyNarcolepsyTeam Member asked a question đź’­

I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.

•
View reactions
A MyNarcolepsyTeam Member

I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more

Using Ozempic For Weight Loss, Help The Narcolepsy To ,,
A MyNarcolepsyTeam Member asked a question đź’­
•
Be the first to like/hug
Best Days
A MyNarcolepsyTeam Member asked a question đź’­

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

•
View reactions
A MyNarcolepsyTeam Member

I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more

Teenager With Narcolepsy
A MyNarcolepsyTeam Member asked a question đź’­

I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.

•
View reactions
A MyNarcolepsyTeam Member

It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.

Help With Finding Doctor/neurologist ??team In My Area…(Los Angeles Suburbs) For Daughter 19 In Bad Shape? Where Do I Start???
A MyNarcolepsyTeam Member asked a question đź’­

L.A area
Need Sleep Study
Narcolepsy type 1 ( Dr. refer)
Daily attacks

•
Be the first to like/hug
Does Anyone Have Any Advice For Living With Unsupportive People?
A MyNarcolepsyTeam Member asked a question đź’­

I am currently living with my parents because I can not afford to live on my own. There is no other options for me right now but I just do not know how much longer I can put up with my mom. She never has understood and I don't know if she ever will.

•
View reactions
A MyNarcolepsyTeam Member

Ask Her if She would be willing to go to the Dr. with You. Maybe he/she can explain the situation.

Is There Progress Being Made On Narcolepsy And Has There Been Any Breakthrough Recently?
A MyNarcolepsyTeam Member asked a question đź’­
•
Be the first to like/hug
If I Don't Have Narcolepsy, Why Do I Still Fall Asleep Suddenly, Without Warning, Even Getting 7 Or More Hours A Night. Apnea Is Controlled!
A MyNarcolepsyTeam Member asked a question đź’­
•
Be the first to like/hug
Understanding and Recognizing Type 1 Narcolepsy (Narcolepsy With Cataplexy) Read Article...
Narcoleptic Personality? Does It Describe You?
A MyNarcolepsyTeam Member asked a question đź’­

Narcolepsy can be associated also with less conspicuous problems, including introversion, sorrowfulness, feelings of inferiority, impaired affectivity modulation, emotional lability, irritability, aggressiveness, and poor attention that some authors have defined as the “narcoleptic personality” (4).Mar 18, 2020

•
View reactions
A MyNarcolepsyTeam Member

I NEED to share this: my violent dreaming ALWAYS involves family, and is so terrifying I can hardly bare to speak of it. O er the last 2 years, the violence has evolved to sadistic trickery: my… read more