I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.

The only common recommended medication I have not tried is Wakix. Currently taking high doses of sunosi, nuvigil, and vyvanse daily. Seems like all the regimens work for about 2 weeks then back to feeling like I did prior to diagnosis.

I currently live close enough to work that I can come home to nap if needed (1-3 times daily), but will be moving soon and will live over 1 hour from the office. Has anyone worked out a sleeping arrangement in the office? If so, what did your setup look like?

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

Three months in a row I have struggled to get my Nuvigil 200mg (60 count) rx. CVS always has it on backorder, and now my new pharmacy took 5 days to get my meds. I work full time, so I make a lot of mistakes when I am unmedicated.
Anyone with CVS caremark? What is a less stressful way to get your meds on time?
Idk if it's my state... PA only allows 2 days before the rx is out, and no auto refills. I can't keep going through this, and I know I'm not alone. :(

Has anybody else experienced issues passing out after eating? Or issues after eating a high-carb meal?