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Top 10 Search Results for "survey half of mynarcolepsyteam members say narcolepsy severely impacts daily life"

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Best Days
A MyNarcolepsyTeam Member asked a question 💭

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

A MyNarcolepsyTeam Member

I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more

Where Do You Get The Latest Information On Narcolepsy From?
A MyNarcolepsyTeam Member asked a question 💭

Check out the MyNarcolepsyTeam Resource Center if you need a place to start - https://www.mynarcolepsyteam.com/resources

Teenager With Narcolepsy
A MyNarcolepsyTeam Member asked a question 💭

I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.

A MyNarcolepsyTeam Member

It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.

Hello. Anybody Have A Link To A Daily/weekly Log Sheet That Is Printable And Specific To Episodes Of Narcolepsy, Cataplexy, Sleep Paralysis?
A MyNarcolepsyTeam Member asked a question 💭
Help With Finding Doctor/neurologist ??team In My Area…(Los Angeles Suburbs) For Daughter 19 In Bad Shape? Where Do I Start???
A MyNarcolepsyTeam Member asked a question 💭

L.A area
Need Sleep Study
Narcolepsy type 1 ( Dr. refer)
Daily attacks

What Is 'team Building' For? Do I Need To Do This?
A MyNarcolepsyTeam Member asked a question 💭

I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.

A MyNarcolepsyTeam Member

I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more

What Are Some Some Of The Best Coping Mechanisms/tips For Coping With Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Don't fight it, go with the flow, and great tips above.

Not Diagnosed Yet
A MyNarcolepsyTeam Member asked a question 💭

With for the last 5 years I've had all incidents of falling asleep without being wake up. Mostly happens when I'm very stressed out or very angry. I have found myself falling sleep at restaurants ,at my job and at home where nobody can get me to wake up or respond. Is there a thing called stress related narcolepsy? Can some help. I will be going to specialist when I got insurance again. Thanks for your time.

A MyNarcolepsyTeam Member

I hope it goes very well!

Using Ozempic For Weight Loss, Help The Narcolepsy To ,,
A MyNarcolepsyTeam Member asked a question 💭
Type 2 Narcolepsy
A MyNarcolepsyTeam Member asked a question 💭

Hi everyone 👋🏻 Wondering if anyone else here has type 2 narc? (Narcolepsy without cataplexy) I’ve tried researching it but even less is known about type 2 than 1. Just going through the motions..

A MyNarcolepsyTeam Member

I was told I have narcolepsy from a doctor but never had the sleep test to see what kind I have!