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I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.
I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more
I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more
Don't fight it, go with the flow, and great tips above.
I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.
It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.
I am currently living with my parents because I can not afford to live on my own. There is no other options for me right now but I just do not know how much longer I can put up with my mom. She never has understood and I don't know if she ever will.
Ask Her if She would be willing to go to the Dr. with You. Maybe he/she can explain the situation.
Does anyone feel embarrassed by having narcolepsy? It use to bother me really bad. I accepted it a few years ago & was able to finally talk about it…now that people see that I’m more active than I use to be & try to depend on me to do things on time is starting to really bother me again
Yes,Jeanne..I feel the same !!
From what I understand about type 2 narcolepsy, interrupted sleep cycles seems to be the central issue. I was prescribed modafinil which gave me the worst headache I have ever experienced and seemed to get more severe with every dose. I completely stopped sleeping and after a week, I stopped taking it. I can't sleep more than a few hours without waking up and I never feel rested. Why wouldn't I be prescribed something that helps me sleep?
I swear by my armodafinil, but psychotropic meds will always be different for different people. They are coming out with more meds that may be worth trying. And pill cutters. Everyone is different.
