Don't fight it, go with the flow, and great tips above.
It was shown years after the h1n1 flu but 1st thought to develop narcolepsy from the vaccine in the UK that people who caught this flu did develop narcolepsy from the virus itself and there is a connection between it and having mononucleosis at some point.
I had been Dx before H1N1
Dr. had demanded that I had to get the flu shots or find a new Dr.
Hi everyone, I haven't had time to check into seeing about my sleep study that my doctor wanted me to do after I told him my medication after 16 years doesn't do as well. He is a family practitioner and doesn't know that much about narcolepsy and told me to go get another sleep study done. The more I research about sleep studies the more scared I become. I've seen where some are not accurate. And another thing I dont think I can go without my anxiety medication and we have to stop all… read more
They didn't tell me to stop my meds.
With for the last 5 years I've had all incidents of falling asleep without being wake up. Mostly happens when I'm very stressed out or very angry. I have found myself falling sleep at restaurants ,at my job and at home where nobody can get me to wake up or respond. Is there a thing called stress related narcolepsy? Can some help. I will be going to specialist when I got insurance again. Thanks for your time.
I hope it goes very well!
I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.
I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more
I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.
I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more
I live in Pembroke Pines, Florida and am looking for a new MD to treat my Narcolepsy. There are lots of them but very few treat sleep disorders. Unfortunately Ritalin and Adderall are not options for me because I have some heart Issues. I tried low doses of both and had to stop because of it.
All info is appreciated. Thanks!
Hey there, I worked at the Univ of Miami School of Med. a long time ago and while I was there, I saw a neurologist specializing in sleep disorders (I have Type 1 Narcolepsy). There are several sleep… read more
I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.
It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.
I’ve have sleep apnea yet after 21 years of dealing with sleepiness I’m getting frustrated on which sleep disorder is happening. Starting to have a paralysis upon awakining each morning k
Start with a day & all night sleep study with sleep doctor