hypocretin in narcolepsy and how it affects sleep and narcolepsy | MyNarcolepsyTeam

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Top 10 Search Results for "hypocretin in narcolepsy and how it affects sleep"

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Not Diagnosed Yet
A MyNarcolepsyTeam Member asked a question 💭

With for the last 5 years I've had all incidents of falling asleep without being wake up. Mostly happens when I'm very stressed out or very angry. I have found myself falling sleep at restaurants ,at my job and at home where nobody can get me to wake up or respond. Is there a thing called stress related narcolepsy? Can some help. I will be going to specialist when I got insurance again. Thanks for your time.

A MyNarcolepsyTeam Member

I hope it goes very well!

What Are Some Some Of The Best Coping Mechanisms/tips For Coping With Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
A MyNarcolepsyTeam Member

Don't fight it, go with the flow, and great tips above.

What Is 'team Building' For? Do I Need To Do This?
A MyNarcolepsyTeam Member asked a question 💭

I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.

A MyNarcolepsyTeam Member

I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more

Best Days
A MyNarcolepsyTeam Member asked a question 💭

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

A MyNarcolepsyTeam Member

I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more

Teenager With Narcolepsy
A MyNarcolepsyTeam Member asked a question 💭

I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.

A MyNarcolepsyTeam Member

It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.

Help With Finding Doctor/neurologist ??team In My Area…(Los Angeles Suburbs) For Daughter 19 In Bad Shape? Where Do I Start???
A MyNarcolepsyTeam Member asked a question 💭

L.A area
Need Sleep Study
Narcolepsy type 1 ( Dr. refer)
Daily attacks

Decreased Appetite, Low Grade Fevers, Any Unusual Symptoms?
A MyNarcolepsyTeam Member asked a question 💭

Since the hypothalamus gland is affected what type of symptoms have you experienced besides excessive sleepiness?

Not sure if all of my bizarre symptoms are directly related to narcolepsy but some might be.
The symptoms I am trying to figure out are :

Low grade fevers (10-15 per month)
Subclinical hypothyroidism with normal t3 &t4
Extreme chocolate milk craving (about 40oz a day)
No appetite, without weight loss , no thirst either

Very interested in others symptoms, sometimes patients can… read more

A MyNarcolepsyTeam Member

I used to get low appetite when I'm sleepy during the day and hunger attacks at night when I wake up. This in the long run led to undernourishment. Thankfully, my neurologists have prescibed a… read more

Hello. Anybody Have A Link To A Daily/weekly Log Sheet That Is Printable And Specific To Episodes Of Narcolepsy, Cataplexy, Sleep Paralysis?
A MyNarcolepsyTeam Member asked a question 💭
How Often Should A Person With Narcolepsy W Cataplexy Have A Sleep Test?
A MyNarcolepsyTeam Member asked a question 💭

I was diagnosed in 2015 which was my first and only test; should a patient be tested again after so many years

A MyNarcolepsyTeam Member

@A MyNarcolepsyTeam Member Hello 👋🏾
I am also waiting for another study
Which is scheduled for August.

Has Anyone Heard Of DSIPs?
A MyNarcolepsyTeam Member asked a question 💭

Is anyone currently being treated for narcolepsy for dopamine inducing sleep peptides? If so - do you find them effective?