new study sheds light on autoimmune nature of narcolepsy and narcolepsy | MyNarcolepsyTeam

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Top 10 Search Results for "new study sheds light on autoimmune nature of narcolepsy"

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Top 5 searches:
Teenager With Narcolepsy
A MyNarcolepsyTeam Member asked a question 💭

I have a teenager with narcolepsy who is really struggling. He has had averse reactions to medications and has a hopeless attitude. I can see how much he is struggling and suffering. When I try to help him and make suggestions, he gets angry with me and frustrated. He has a lot of supports in place but he is in the worst place right now. How do I support him and support myself at the same time? It is so hard to be a mother and feel this helpless.

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A MyNarcolepsyTeam Member

It sounds like he is suffering from depression also. That needs to addressed so he can feel better. Depression makes you tired during the day also complicating narcolepsy.

Help With Finding Doctor/neurologist ??team In My Area…(Los Angeles Suburbs) For Daughter 19 In Bad Shape? Where Do I Start???
A MyNarcolepsyTeam Member asked a question 💭

L.A area
Need Sleep Study
Narcolepsy type 1 ( Dr. refer)
Daily attacks

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What Questions Should I Be Asking My Doctor/specialist?
A MyNarcolepsyTeam Member asked a question 💭
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A MyNarcolepsyTeam Member

And read about the test retest reliability of the test. It surprised me.

Best Days
A MyNarcolepsyTeam Member asked a question 💭

I want to know about one of your best days you have had with your narcolepsy. Tell me how you felt, who you were with , everything.

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A MyNarcolepsyTeam Member

I hate to answer this question because my BEST DAY is Thursday is my first day off I sleep the whole 24 hours my children are grown I have a dog I do take her out a couple times but I do not get out… read more

What Specialist Will I Need To See To Visit In Order To Figure Out If I Have Narcolepsy.
A MyNarcolepsyTeam Member asked a question 💭

I’ve have sleep apnea yet after 21 years of dealing with sleepiness I’m getting frustrated on which sleep disorder is happening. Starting to have a paralysis upon awakining each morning k

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A MyNarcolepsyTeam Member

Start with a day & all night sleep study with sleep doctor

(edited) Has Anyone Tried Light Therapy Glasses?
A MyNarcolepsyTeam Member asked a question 💭

I'm going to purchase luminette 3 glasses to help with my EDS. (Edit: I removed "blue" from my question since I noticed I may have misnamed them.)

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A MyNarcolepsyTeam Member

Here's the wording from the Luminette 3 website
Luminette® emits a safe blue-enriched white light peaked at 468 nm. This wavelength is proven to be the most effective at triggering the body's… read more

What Is 'team Building' For? Do I Need To Do This?
A MyNarcolepsyTeam Member asked a question 💭

I don't know - selecting people for my "team" seems playing favorites with people I don't know. That seems weird to me.

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A MyNarcolepsyTeam Member

I regret your negative experience Lisa. CBD can be purchased locally (my home in sw La.). My online purchase came from Able Farms. They have a "CBD Sleep Dropper". My current prescription sleep… read more

Can This Be Believed?
A MyNarcolepsyTeam Member asked a question 💭

Emmanuel Mignot wins Breakthrough Prize for discovering cause of narcolepsy

https://med.stanford.edu/news/all-news/2022/09/...

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A MyNarcolepsyTeam Member

Yes BUT this is only true for type 1 narcolepsy. Scientists now believe that type 1 narcolepsy could be autoimmune in origin due to a gene found in 99% of NT1 patients. (for those interested, HLA… read more

If I Don't Have Narcolepsy, Why Do I Still Fall Asleep Suddenly, Without Warning, Even Getting 7 Or More Hours A Night. Apnea Is Controlled!
A MyNarcolepsyTeam Member asked a question 💭
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Understanding and Recognizing Type 1 Narcolepsy (Narcolepsy With Cataplexy) Read Article...
What Are Some Some Of The Best Coping Mechanisms/tips For Coping With Narcolepsy?
A MyNarcolepsyTeam Member asked a question 💭
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A MyNarcolepsyTeam Member

Don't fight it, go with the flow, and great tips above.